These are the most common symptoms of CVID. However, each child may experience symptoms differently. Symptoms may include:
- Infections that keep coming back in the eyes, skin, ears, sinuses, and lungs (the more these infections happen, the greater the risk of scarring and permanent damage to the lungs and breathing tubes)
- Inflammation in the joints of the knees, ankles, elbows, or wrists
- Stomach and bowel problems
- Increased risk of developing some cancers, especially lymphomas
- Autoimmune diseases
Your child’s healthcare provider will figure out the best treatment based on:
- How old your child is
- His or her overall health and medical history
- How sick he or she is
- How well your child can handle specific medicines, procedures, or therapies
- How long the condition is expected to last
- Your opinion or preference
Treatment may include:
- Immunoglobulin therapy. IV infusions of immunoglobulin (antibodies) may be given to help boost the child’s immune system and replace the immunoglobulins that are needed.
- Medicine. Antibiotics to prevent infection as prescribed by your child’s health care provider.
- Routine blood tests.
- Postural drainage of the lungs. This is done to help with lung infections and removal of secretions.
- CVID is an immunodeficiency problem that causes the child to have a low level of antibodies and a decreased responsiveness to some vaccines, making it difficult for the child's body to fight diseases
- Children with CVID experience infections that keep coming back that can affect the eyes, skin, ears, sinuses, lungs, joints, and GI tract. The joints and skin are also commonly affected by inflammation and rashes not caused by an infection.
- Treatment includes immunoglobulin therapy, medicines, routine blood tests, and postural drainage of the lungs
- Avoiding infections and frequent hand washing are important in preventing infections
Tips to help you get the most from a visit to your child’s healthcare provider:
- Know the reason for the visit and what you want to happen.
- Before your visit, write down questions you want answered.
- At the visit, write down the name of a new diagnosis, and any new medicines, treatments, or tests. Also write down any new instructions your provider gives you for your child.
- Know why a new medicine or treatment is prescribed and how it will help your child. Also know what the side effects are.
- Ask if your child’s condition can be treated in other ways.
- Know why a test or procedure is recommended and what the results could mean.
- Know what to expect if your child does not take the medicine or have the test or procedure.
- If your child has a follow-up appointment, write down the date, time, and purpose for that visit.
- Know how you can contact your child’s provider after office hours. This is important if your child becomes ill and you have questions or need advice.
January 16, 2018
Blavias, Allen, J., DO,Brown, Kim, APRN