Coping with Terminal Cancer
Sometimes, cancer can’t be cured. When that is the case, patients and families are faced with complex emotions and decisions, and many end-of-life issues.
A terminally ill person is not expected to be cured of their disease or illness. But they still require a lot of care and comfort. Knowing what a dying person understands about their condition, as well as their fears, feelings, emotions, and physical changes that occur may help those around them make the diagnosis and dying process easier to cope with.
The emotional, physical, and spiritual impact a dying friend, family member, or spouse has on a family and community can’t be measured. Understanding how people at different ages and developmental levels view death and dying may help to ease many of the fears and uncertainties associated with this process.
The concept of death
Everyone has their own unique idea or concept of death. This is influenced by your past experiences with death. Other influences include your age, religious beliefs, emotional development, and community. Movies, TV, and books are filled with images of death. The person with a terminal condition may have lost a family member, friend, or pet in the past. Treating death as a part of life is difficult. But it may help ease some of the fear and confusion around death. Dealing with death must be done within the belief system of the patient and family.
How children and teens view death
For an infant, death has no real concept. But infants do react to separation from parents, painful procedures, and any change in their routine. An infant that is terminally ill will need as much physical and emotional care as any age group. Keeping a consistent routine is important for the infant and his or her caregivers. Babies can’t tell you what they need. So they often express fear by crying.
For toddlers, death has very little meaning. They may receive the most anxiety from the emotions of those around them. When a toddler's parents and loved ones are sad, depressed, scared, or angry, they sense these feelings and become upset or afraid. The terms death or forever or permanent may not have real value to children of this age group. Even if they have had past experiences with death, the child may not understand the relationship between life and death.
Preschool-aged children may begin to understand that death is something feared by adults. This age group may see death as temporary or reversible, as in cartoons. Death is often explained to this age group as going to heaven. Most children in this age group don't understand that death is permanent. They don’t understand that everyone and every living thing will eventually die, and that dead things don't eat, sleep, or breathe. Death should not be explained as sleep to prevent the possible development of a sleep disorder.
At this age, children’s experience with death is affected by those around them. They may ask questions about why and how death occurs. Preschool children may feel that their thoughts or actions have caused the death or the sadness of those around them. The preschool child may feel guilt and shame.
When children in this age group become seriously ill, they may believe it is punishment for something they did or thought about. They don’t understand how their parents could not have protected them from this illness.
This same idea may make preschool-age siblings of a dying child feel they are the cause of the illness and death. Young siblings of dying children need a lot of reassurance and comfort during this time period.
School-aged children are developing a more realistic understanding of death. They are starting to understand death as permanent, universal, and inevitable. They may be very curious about the physical process of death and what happens after a person dies. They may fear their own death because of not knowing of what happens to them after they die. Fear of the unknown, loss of control, and separation from family and friends can be the school-aged child's main sources of anxiety and fear related to death.
As with people of all ages, past experiences and emotional development greatly influence a teen’s idea of death. Most teens understand that death is permanent, universal, and inevitable. They may have had past experiences with the death of a family member, friend, or pet. Just like adults, teens may also want to have their religious or cultural rituals observed.
Most teens are beginning to establish their identity, independence, and relationship to peer groups. A major theme at this age is the feeling that they won’t die, that they are immortal. Their realization of their own death threatens all of these objectives. Denial and defiant attitudes may suddenly change the personality of a teenager who is facing death. Teens may feel as if they no longer belong or fit in with their friends. They may feel they can’t talk with their parents.
Another important concept among teens is self-image. A terminal illness or the effects of treatment may cause many physical changes. Teens may feel alone in their struggle, and scared, and angry.
It is important for parents to realize that children of all ages respond to death in a unique way. Children need support. They also need someone who will listen to their thoughts and help ease their fears.
How adults deal with death
Grief is a natural human response to the loss of a loved one. It can show itself in many ways. Grief moves in and out of stages from disbelief and denial, to anger and guilt, to finding a source of comfort, to eventually adjusting to the loss.
It is normal for both the dying person and the survivors to feel grief. For survivors, the grieving process can take many years and many forms. The challenge of accepting death and dying as the end stage of life is what the grieving process is all about.
What is anticipatory grief vs. sudden loss?
This occurs when someone has a long illness, and their death is expected or anticipated. Anticipating the loss of a loved one can be just as painful and stressful as the actual act of losing that person. Anticipatory grief allows the family to get ready for the inevitable death. This can be a time to resolve issues and concerns. It is a time to seek the support of spiritual leaders, family, and friends. It’s also a time to and clarify the loved one's wishes for funeral and burial arrangements and other end-of-life issues.
This refers to a death that happens unexpectedly and suddenly, such as a fatal accident or heart attack. Such tragedies can leave survivors feeling shocked and confused. Loved ones are often left with many questions, unresolved issues, and many emotions, including anger, guilt, and pain. Support from family, friends, and spiritual leaders is key for anyone who has had a sudden loss.
What may happen in the case of anticipated loss?
Many people facing their own death are willing to discuss issues of death and dying. This can be a time to discuss spiritual issues, resolve family concerns, reflect on a loved one's life and accomplishments, and express gratitude. Some may feel that they have unfinished work of personal importance to complete. This time is also a chance to put practical matters in order, including the following:
Can funeral expenses be prepaid?
Which funeral home would the person prefer to handle arrangements?
Can the person help with obituary information to make sure it is accurate and complete?
What are the person’s specific funeral wishes?
If there will be a religious service, can the person facing death help plan favorite readings or music?
Is cremation or burial preferred?
Has a cemetery plot been purchased?
Does the person want memorial contributions to be made to a certain charity or organization?
Can the person give information about practical issues, such as wills, bank accounts, lawyer's name, pension plans, retirement funds, and life insurance policies?
June 29, 2018
Gersten, Todd, MD,LoCicero, Richard, MD,Sather, Rita, RN,Ziegler, Olivia, MS, PA